Kayli has been tolerating soft foods pretty well, so this evening she will get to order a regular (low sodium) meal!! She is also moving out of the ICU PRAISE GOD!! :) She will be in room 984 as of around 2pm this afternoon which is in the IMU (where she was during her first stay, one step down from ICU). Her length of stay is still unknown, but the liver doctor would like to see her go home tomorrow or Friday. She really hopes so because "New Moon" comes out this weekend...HA HA HA! We also still don't have an idea of when she can return to school. She is napping now, but I am sure it is because she was able to go for a walk this morning. Mark went with her and said she did pretty good, didnt go very far but she tired very easily and still feels a little weak and shaky.
A liver transplant is now somewhat inevitable. Before we had hoped the liver might possibly respond to drug therapy, but we now know the liver is moving in the opposite direction as evidenced by a bit of jaundice beginning to appear. Kayli has been moved higher on the list and her MELD score is now a 24, where as it was only at 17 prior to this hospital trip and GI bleeds. (For more information on this score http://en.wikipedia.org/wiki/Model_for_End-Stage_Liver_Disease) However, the surgeons have stated that they will wait for the absolute perfect liver for her.
Please visit http://www.liverfoundation.org/ for more information on the American Liver Foundation.
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