I spent the day with Emily yesterday, getting her ready for and taking her to her Seussical auditions. Kept in contact with Mark throughout the day, things and stayed pretty quiet and not much to report.
Granny Norma went down to visit and ended up staying the night with Kayli so that Mark could come home and take a break, Kayli seemed to be doing well and was stable and even doing some walking around her room on her own. Late in the evening Kayli had some sort of reaction to what they think was Vitamin K injection. She'd had that before without any problems, but this time for some reason she reacted to it. Not sure of all that happened or measures taken, but it was another scary moment for Kayli and her Granny. After things settled down and Kayli had gone back to sleep, she awoke again vomiting blood around midnight. Mark headed back down to the hospital.
He called me where there, GI team was hand and took her to the OR again and performed another upper GI, but this time could not find the source of the bleed. But they are now talking about doing a TIPS procedure which is some weird shunting procedure...this scares me to death...and I would rather they find the source of the bleed before they do this major surgical procedure. If they do it they would be doing it today at 9am. SO Norma is now on her way home to stay with Emily so that I can head to the hospital as Emily does not wish to go to the hospital. Mark has not slept in about 24 hours, except maybe a couple hours here and there.
Can we get off this ride now? I didnt like it in the first place...but now I am REALLY not liking it. As I type this all of my animals (dog & 2 cats) are sitting around me...like they know I am upset or something. I cannot simply describe what I am going through- my heart ACHES for my beautiful daughter. Just starting out on a magic high school ride as a Freshman...will she ever get to finish normally?? She had so many plans for band, softball, and other activities...will she be able to continue any of them ever?
Your continues prayers are very appreciated and needed!!! OH- and could someone go mow my grass??? We got a stinking letter from the homeowners association tellling us to mow & edge.....jerks...LOL
No comments:
Post a Comment