Daddy stayed with her last night, and apparently there were a few rough moments. The ICU team was monitoring her very closely since it was her first night off of the ventilator. At some point during the night she had a very bad reaction to something- though they never pin pointed what it was- Mark said it was pretty scary. The belief is that it was a combination of the breathing treatment she was getting (Albuterol) and the dose of Plasma- or one or the other. Her heart rate and blood pressure dropped drastically & suddenly. They discontinued everything, then slowly started things back up one at a time except for the Albuterol. A chest x-ray was done which showed her lower lungs were not inflating- believed to be a result of having been on a vent and her lying down- not active for a few days.
When I arrived to see Kayli early this morning, she was coughing up blood- which of course scared the bejeezus out of me...the one thing they are trying desperately to avoid is ANY and ALL bleeding because the risk of her bleeding out is SO high. Mark said the respiratory therapist had been in and done a really aggressive breathing treatment which caused that, and the doctors were discussing what to do about it at that moment. They watched her pretty closely, but the bleeding stopped relatively quickly, though the coughing didn't. So the nurse & doctor encouraged her to use the incentive spirometer- which seemed to be helping.
After the doctors made their rounds, they ordered that her arterial line be removed, which she was happy about even though it was painful to remove. Her central femoral line is giving her some heartaches, but it is better than the alternative of having to stick her everytime they draw labs. She still has 3 active IV lines in addition to the central line. She was able to get out of bed for a little while this morning and sat in a chair and ate her "brunch".
Kayli was really really grumpy the first half of the day, but then again how can you blame her. She is almost 15, weekend plans have been ruined several weekends in a row now, she misses all of her Band, CYT, & Softball friends, and she HADN'T EATEN IN 5 DAYS!!! Which you know is enough to make any teenager grumpy! They changed her diet twice today, first they allowed her to have clear liquids for lunch. They brought her chicken broth, beef broth, jello, and apple juice for lunch...she ate the jello, and then asked for more jello. She took a pretty nice long nap this afternoon, and was resting comfortably when her Granny arrived for the evening shift. Mark and I are at home this evening spending some time with Emily and helping her with math homework.
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