Waiting...

Mark and I are in Kayli's room waiting for her procedure to be over. Its really quiet at the moment.

I arrived this morning to find Kayli on a ventilator. One of the scariest sites I think for a parent who is not prepared to see that. Mark was asleep in the corner, snoring loudly. The nurse was attending to her, and we laughed a little about the racket Mark was making.

After her 2nd upper endoscopy this morning, they left her intubated so that she could rest and not have to be re-intubated for her procedure today. It was just a scary thing to see. I am glad that I did not bring Emily with me this morning to see her sister. This morning Kayli is having what they call a TIPS- because the pressure in her portal vein is what is causing her GI bleeding, they will bypass this vein through her liver with a shunt. Thats the best way I can describe it. The dr said her situation right now is critical, and he sounds hopeful she will have a positive outcome with this procedure. At this time however, it is unknown how much longer she will be in the ICU, hospital, etc. Her kidneys are struggling a little right now, and dr said the dye they will use in the procedure may cause overload on them a bit and she may need a little dialysis to help them along.

Hopefully they will be done soon and she will be back in the room soon and not on the ventilator. Thank you all so much for your prayers and encouragement.


***Just in: they are bringing Kayli back to her room. They were unable to complete the procedure because her platelets count dropped again. They ordered platelets from the blood bank but they are out so having to order them from an outside source. So we wait, she is not back yet so I am not sure if she will continue to remain on the vent while they wait- they said the procedure may not be done until later today or possibly even tomorrow dependig on when they can get the platelets, get them infused, and get her platelet count back up.
They just wheeled her in and it looks as thought she will remain intubated on the ventilator. This actually may be best for her, she can rest and let the machine and meds work for her.