Friday, March 19, 2010

March 19, 2010

It has been such an uneventful month, REALLY! We are enjoying the end of Spring Break, a boring Spring Break for the girls. We did nothing and went nowhere. I worked all week, and that left Kayli to babysit her sister and do chores. No exciting vacations or trips...though we did start off the week paying a visit to her softball team at a tournament at SMGSL- ran into lots of our good friends who we've missed!!

So quick update. Kayli is doing well medically. She had a doctor's appointment this past Tuesday, and everything looked good from what I understand. I was working, so Mark took her. The doctor released her to play her saxophone again, and they also reduced her clinic visits to ONCE A MONTH!! She does still have to get labs drawn weekly, so they will be keeping a close eye on her bloodwork and med levels. But the once amonth for clinic visits is pretty spectacular news!! So really there is not much else new to share there. Her scar is healing nicely, and if you bump in to her you can ask to see it- she shows it off pretty proudly.

Some bits of news on Kayli- she will be going to the Senior Prom in April with Ryan. Has her dress picked out and its gorgeous. Its being altered right now. Fit like a glove, just needed to be shortened by about an inch. I'll post pictures after the big event. Her and Ryan are both so excited (and mom is too a bit?).

Kayli also will be participating in a pageant!! National American Miss. Sounds very interesting- scholarships and such. She was recomended by a friend, and received an invitation to an "Open Call" (which I am sure LOTS of girls get). We weren't able to make it, but we faxed in her application and picture, they called her for an interview, and they accepted her. She will go to a callback next week, where they will teach them modeling and go over what to expect. Then in June she will attend the state pageant in Houston, where she could possibly advance to Nationals. She is really excited. She and her sister both did glitzy beauty pageants when they were younger, we still have a garage full of tiaras and trophies to prove it...but this one seems to be a little different. Can't wait to see how she does with this.

She and her sister are still both doing really really well with their Cinderella rehearsals! Kayli as a servant and a townsperson has some key parts and does a couple of really neat dances. The servant dance is especially moving to see, lots of twirls and turns, and she does so well. Truly inspiring to see...so if you want to see a FANTASTIC show with a live orchestra and wonderful costumes- come see Cinderella. CYT is offering a special price of $8 per ticket if you act now and order directly from us before April 1st!!! After that you can order tickets online at http://www.cythouston.org/ at pre-show prices.

Sunday, March 7, 2010

HAPPY LIVER-versary!!!! :)

I feel so so bad I have not gotten on to update in almost a month!! But that is how things have been going. I have lots of pictures and news to share. Which will mean a re-post this evening. Sorry!

But I will say that this past week on March 3rd, we celebrated what we are calling Kayli's 2 month Liver-versary! :D  Two months have passed a since a new liver brought her new life. We continue to Praise God and the medical team and the donors family.

We had one little scare last week, when Kayli's labs came back showing elevated liver function tests and creatinine levels. We were told to go have her labs drawn again to verify. We did a re-draw 2 days later and the labs were back looking normal again. Cause? Kayli went on a "self-diet" and didn't eat for nearly 2 days, and wasn't drinking water like she was supposed to. When we discovered this we began regulating her diet for a couple of days during the lab re-draw, and the 2nd set of labs were fine.
At her last appointment with the dr this past week, her nurse, Makita, showed her on her chart that Mom and Dad actually say the things we do for a reason... "Here's what your numbers looked like as your new liver has gained more and more function and is now working full force...here is what your numbers looked like when liver is working at 100% perfectly...here is what your numbers look like when you don't drink water or eat for 2 days...here is what your numbers look like as your liver is recovering from you starving it for 2 days...see where I am going with this???? Kayli, "OH". She got it then finally. Like any normal teenager she doesnt want to believe mom and dad until it comes from a "higher authority" LOL<

SO now that she understands that eating right and drinking plenty of water make all the difference in how she feels...all has been going well. Now we are focused on grades, school work, and Cinderella!!!

So GOOD MORNING and have to run for now, but hopefully I can get on this evening and give an even better update WITH pictures!!! :D